Cry if you must, but laugh if you can.
As I sit here with my daughter in New Orleans, I keep
looking at the video clips and pictures sent to me of my Mom. She has been moved into Hospice care at the
Masonicare complex in Wallingford. 2
weeks ago, we stopped the blood pressure medications, the blood thinner, the
cholesterol management drugs. Then last
week, the Aricept was stopped. The only
things left are the antipsychotic medications, which were only recently begun
in January. Because she is not eating,
there is no need for insulin or diabetes drugs.
And the January medications are not the same as the current medications.
I remain convinced that was the beginning of
this very fast slide into a worse hell than she was in before. Trazadone and Risperadol, at low dosages (or
so we think) didn’t do much at first.
Dad was in charge of those medications, while I kept track of all the
others.
Dad never wrote down the numbers of half pills he gave
her…we aren’t sure what her intake was from January till mid-April.
By end of April, Mom’s behavior had deteriorated to the
point of pushing Dad over the edge. As
regular readers know, that is when the ride into crazy town really began.
Now, she can get Haldol, Morphine, and Valium to help her
calm down. Even without food, this lady
is still trying to get out of the chair that she is in, still verbalizing as
well. She has no ability to walk, and
can barely move her hands, but her voice is still pretty strong, considering.
Dad is staying overnight with her. They have a family room, as well as an
additional bed right in her room, for family.
I knew I had to come here to talk to this youngest child who
has grown her wings and flown to the South.
I couldn’t pass news of her Grammie dying to her on the phone or skype
alone. While we all knew this journey of
our family was going to end with a death, it wasn’t real until very
recently. I admit, as well, to needing a
respite from reality…reality of my Dad’s hip replacement recovery, reality of
Mom’s spirit leaving her. Knowing what
is coming after this will be difficult at best.
This city provides a recharge for my batteries.
There truly is something about New Orleans that cannot be
put into words very well. The music
everywhere, the people all really looking at each other, the Lake and the River
surrounding it all. And of course, a fat
girl cannot ignore the FOOD! The comfort
of coffee that has the taste of chicory, the bacon that is thick and crunchy,
the beignets, the oysters that melt with sweetness and a briney squirt of
flavor, jambalaya, the gumbo with claws in it, the red beans and rice that have
no equal away from this city. Comfort
for sure.
There is a look of concentration on even the palm readers in
Jackson Square as they size up their marks.
The sax players have it as well, as they look at the folks and try to
guess what to play to get more than just coins in their buckets. I walked past the mule wagons, and a driver
yelled to someone behind me “Hey how ‘bout a ride?” “Not you, honey, although I like my women
voluptuous like you…” is what he said to me.
I find myself slipping right into the accent, which is a
combination of Brooklyn and the Gulf Coast.
Y’all, Thank You So Much, You Take Care Now…Feeling Some Kind a Way…uh
huh. It makes me feel part of the
city…people talk to you here, like you matter.
Of course, in the Quarter it is to be expected, but outside of it? In the neighborhoods? It is just there. It fits who I am.
I know why my daughter will not come back north. She likes the City, and the way of life in
the City. This City just happens to be
the one she is in now. She has a comfort
level here that is different from what she had in Connecticut.
It has been hard to have the discussion with her. She hasn’t seen her Grammie, outside of
Skype, for over 2 years now. She hasn’t
been able to watch the decline. I wish I
knew what she was thinking about it all, but she is very quiet about the whole
thing. When I shared what will happen
afterwards, I don’t think she was ready for the idea of a memorial mass rather
than a full fledged funeral.
I want her to come North, if just for a few days, to see
family who can’t travel to see her, to be with us for a short time…to mourn
where her Grammie lived. I don’t need
her at the memorial, but we need her there afterwards, when she is comfortable
to come.
I talked to my Dad last night and then again just a few moments ago, as he was settling there in
the family room. He is resigned to what
is happening, but still not living in the real world. It is his defense mechanism, I think. I’m really trying not to be harsh with
him. I did again tell him, though, that
I will be home late Tuesday, and will see him on Wednesday. If Mom goes before that, it is ok with
me. I say goodbye to her every time I
leave her. That is what we all do,
except for him.
While he will appear to move on quickly, to all those looking in, he
will never truly say goodbye to her. He
will go out to breakfast and to dinner with his friends (of course they are mainly
women! They are the ones who are left
these days) and family. He will become
accustomed to not seeing her, and not hearing her.
I have seen a talking, active, fun mother in my dreams every
night I’ve been here. That is what I
keep holding on to while I am here. When
I return, reality will return as well, and I can let her go, I hope.
NO is a good place to be--they seem more comfortable with death and dying and spirits there; it's palpable. We hold you and your family in our hearts. And I am almost done with the shawl.....
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